#019 Research and resources for siblings with Eric Goll

#019 Research and resources for siblings with Eric Goll

019, Blog, Podcast
You can listen to this podcast episode on iTunes or Spotify. Eric Goll along with Helen Ries and Becky Rossi, all siblings of a person with an intellectual disability, carried out an interesting research study about the top concerns of siblings of adults with intellectual disabilities. Here is what they found. Top issues identified: Mental health of their disabled sibling and their parents.HousingManaging relationshipsEmotional Support for themselves Farther down the list of concerns was funding and support for their brother or sister. Isn’t that interesting?! The research also found that the intensity of support increasing over the years though it decreased temporarily in the 30-39 age group. Perhaps (though no information was collected on this) building a family and a career during that time affecting how much support sisters and…
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#018 Developing the chutzpah & skills for extending invitations ~ with Tom Doody  2 of 2

#018 Developing the chutzpah & skills for extending invitations ~ with Tom Doody  2 of 2

018, Blog, Podcast
You can listen to this podcast episode on iTunes or Spotify.  If you haven’t heard episode 1 of my interview with Tom Doody, go back and check it out! You can find it here.  If you would like a printable pdf of Tom’s tips and tricks, click here. You can refer back to it next time you are trying to work up the chutzpah to extend an invitation or trying to figure out how to do it well.   Tom Doody has been involved with disabled people for over forty years. He has worked in a variety of services in direct service, management, and consultative roles. For the past thirty-five years he has been actively involved with Social Role Valorization training. For the past thirty years, a major part of his work has been to encourage…
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#017 Extending invitations is important even when it feels like swimming up stream  ~ with Tom Doody  1 of 2

#017 Extending invitations is important even when it feels like swimming up stream ~ with Tom Doody 1 of 2

017, Blog, Podcast
You can listen to this podcast episode on iTunes or Spotify.  Relationships are hard for all of us. Extending an invitation to start a new relationship or deepen a relationship is really hard. It makes us feel vulnerable. It leaves us open to rejection.   Some people with disabilities will need us to make invitations on their behalf. This can be super hard! I know it is for me!  That’s why I’m excited that Tom Doody agreed to talk to us.   Tom Doody has been involved with disabled people for over forty years. He has worked in a variety of services in direct service, management, and consultative roles. For the past thirty-five years he has been actively involved with Social Role Valorization training. For the past thirty years, a major part of his work has been to…
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#016 Be careful how you define your community – it matters

#016 Be careful how you define your community – it matters

Blog, Podcast
You can listen to this podcast episode on iTunes or Spotify. A transcript for this episode will be available soon. Check back often. Humans need human connection. With people who understand them. I get it. But let’s not surround ourselves ONLY with other parents of kids with disabilities. 1. We don't help people to understand and be "our people" by isolating ourselves. If we want people to "get it" then we need to offer the opportunity. That means not shutting ourselves off. 2. If we want our kids to exist and be accepted in the community then they need to be IN the community! 3. All the people on our island have got their own stuff going on! When we primarily surround ourselves with other parents of kids with disabilities…
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#015 Why I let my son get frost bite and the dignity of risk

#015 Why I let my son get frost bite and the dignity of risk

Blog, Podcast
You can listen to this podcast episode on iTunes or Spotify. Recently I sent my son out onto a mountain during the frigid Canadian winter on what was the coldest and windiest day of the year with gusts of wind strong enough to close down parts of a ski resort and a chill of colder than -30 degrees Celcius. When he returned, he had frost bite. On his face. What on earth was I thinking you ask? Should somebody call and report me? (OMG I really hope nobody reports me!) What I was thinking, was a reasonable assumption of risk and the dignity of risk. Our family spent a couple of days at Mont Tremblant, Quebec. A popular ski resort in the Laurentian mountains, a few hours north east of…
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#014 Vision leads to belonging in places without paid support

#014 Vision leads to belonging in places without paid support

014, Blog, Podcast
You can listen to this podcast episode on iTunes or Spotify. A transcript for this episode will be available soon. Check back often. Last week, episode 13 of the podcast, I told you all about how my son’s really great support workers moved on in their lives and their careers in education. And I explained that this had largely decimated his social life because my son needs support to do most things. I’m not sure what to do about it! So, the first two things I’ve done are: 1. Go back to vision 2. Ask people I trust to help me think it through. One amazing thing that has happened since I published that episode and sent out a link to the podcast by email… Did you know that I…
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#13 The first 2 things I am doing in response to my son’s social life imploding

#13 The first 2 things I am doing in response to my son’s social life imploding

013, Blog, Podcast
You can download a cheat sheet on the first two things to do when you don't know what to do. Hi! Genia Stephen here. Welcome to episode 13 of the Good Things in Life podcast. I am so glad you are here! Today I’m going to tell you about a struggle I am having right now in my life and it is nice to think that I’m sharing with people who might be able to relate. You know, sometimes in life things go along well for a while. And then BAM! All of a sudden you are looking around at a hot mess and trying to figure out how to pick up the pieces. That’s what is happening right now for my son Will. What happened... Will has disabilities and…
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#012 Paul Young: High Expectations and Mentorship

#012 Paul Young: High Expectations and Mentorship

012, Blog, Podcast
A transcript for this podcast episode is available here. Paul Young is an internationally-recognized keynote speaker, winner of the Governor General Meritorious Service Cross, the former Chair of the Council or Canadians with Disabilities, Founder of People First of Nova Scotia, former president of People First of Canadian, and retired CBC Radio technician. But if you had looked at Paul as a child you might not have predicted a life full of such impressive accomplishments. On today’s episode, Paul and I talk about what made the difference in his life. From a small town with no supports, services or any expectations for growth and success, to a life full of accomplishments. Paul attributes his success to the power of high expectations and mentors who believed in him. The takeaway for…
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#011 The Captivating Life and Influence of Becky Till Part 2 – with Linda Till

#011 The Captivating Life and Influence of Becky Till Part 2 – with Linda Till

011, Blog, Podcast
To listen to part 1 of this episode click here. The transcript of this episode will be available soon. Check back often. After finally freeing Becky from a life of neglect, abuse and captivity, Linda and Becky set their sights on the good life with a “come-hell-or-high-water-just-watch-us!” attitude. Linda began advocating for Becky to become a student at her local school because she knew that Becky needed to be immersed in a life rich in language, learning, opportunities and relationships. First the school board said that Becky should go back to the institution for her education. Ummm… NO. Then they suggested that Becky go to a segregated school. Ummm… NO. The best they could figure out was a segregated class in a regular school in the next town over. It…
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