#088 Love and accountability in the face of the tyranny of the “normal”

Victoria Freeman’s book “A World without Martha: A Memoir of Sisters, Disability and Difference” is fundamentally about what it means to live in a world where only some people are deemed worthy of love. On the podcast, Victoria and I read excerpts from the book and explore the themes of this all-too-real story.

This podcast comes with a #triggeralert. It also comes with the opportunity to use Victoria’s story – and Martha’s story – as motivation, fuel, learning to make life better for those in our community who are othered and excluded.

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#085 – What matters gets counted – with Samantha Noyek, Claire Davies, and Nora Fayed

In this episode, I’m talking with Samantha Noyek, Claire Davies, and Nora Fayed about the importance of researching the obvious, the idea of quality of life as it relates to kids with significant disabilities, and building a dictionary of our kids unique communication styles.
In Nora’s words: “We’re talking about involving these children in the world when society has not even thought to even consider them.”

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#084 – Bias is a Human Experience – with La Shanda Sugg

“Can we realize that even though we’re loving our children, we can be doing them so much harm when we don’t address those beliefs, those worldviews, and those expectations: the biases that we have?”
La Shanda Sugg joins me on the podcast to unpack the relationships between trauma, bias, and othering and how this plays into all of our interactions with strangers, and with our own kids. This is a podcast you do not want to miss.

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#083 – “The system never had any room for me” – Jean-Luc Martel

“I very happily describe myself as a lifelong rebel because the system never had any room for me.” This week on the podcast, Jean-Luc Martel shares his experiences with a broken educational system. Even in programs designed for individuals with disabilities, Jean-Luc found that so often there was not an appropriate understanding of how lived experiences and vulnerabilities shaped how he and his peers encountered the system. Jean-Luc’s story reminds us to continually lend a critical eye to the way services are delivered.

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#081 Can inclusion heal trauma? with Mary Vicario

Mary Vicario is a Certified Trauma Specialist with over 30 years of experience working with and training children, adults and people with developmental disabilities who have experienced trauma. Mary brings neurobiology to life using common language and interventions for people who have experience trauma, and those who work with or support them.

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