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How to approach setting up supported decision-making arrangements in your area with lawyer, Corinne Boudreau

How to approach setting up supported decision-making arrangements in your area with lawyer, Corinne Boudreau

023, Blog, Podcast
You can listen to this podcast episode on iTunes or Spotify.  Corinne Boudreau has been a lawyer practicing in Nova Scotia since 2002.  Corinne graduated from Dalhousie University with a Masters in Health Administration and a Law Degree.  She worked in long-term care before attending law school.  Corinne has advised individuals and business owners on estate planning, tax planning and business law issues.  She has taught as Dalhousie University and has developed legal courses for business owners.  Corinne practices law at O'Keefe Law in Halifax, NS and runs an online legal business Legal Essentials Inc.  Here is Corinne’s top tips for figuring out supported decision making in your area:  Who you choose to have legal decision-making power is the single most important variable whether you have one guardian or several people contributing.  Start before…
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Michael Kendrick on Guardianship and Supported Decision Making

Michael Kendrick on Guardianship and Supported Decision Making

022, Blog, Podcast
You can listen to this podcast episode on iTunes or Spotify.  Michael Kendrick is currently director of initiatives on supported decision making for the national Center for Public Representation. He has spent the last twenty years in international consulting and prior to that was the Assistant Commissioner for the Massachusetts Developmental Services Department, Director of the Institute for Leadership and Community Development and consultant to the International Initiative On Disability Leadership.  Guardianship removes the person from decision making. Supported decision making compensates for the areas on one’s life where they might have difficulty with decisions.   Supported decision making really reflects the natural way that all of us make decisions.   In supported decision making the person remains the decision maker in their life and are supported in their decision by people who have chosen to be supportive…
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Audrey Cole: “Guardianship replaces the person.”

Audrey Cole: “Guardianship replaces the person.”

021, Blog, Podcast
You can listen to this podcast episode on iTunes or Spotify.  Guardianship is the most common legal method for making decisions on behalf of someone who is deemed incapable of managing important legal decisions on their own. Critics argue that this is a human rights violation and has negative consequences thought can and should be avoided. “Even voluntarily, it seems an unnatural thing, to literally give yourself away completely so that you are no longer relevant [in your own life] and that is what guardianship does and has always done.” ~ Audrey Cole  Audrey Cole is an activist, educator and lecturer with deep roots in the Community Living movement. The birth of her son Ian energized her interests in human rights, values and ethics, the social well-being of disadvantaged people and the social roles…
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#020 Have Wheelchair Will Travel: Making travel accessible to families

#020 Have Wheelchair Will Travel: Making travel accessible to families

020, Blog, Podcast
You can listen to this podcast episode on iTunes or Spotify.  This woman knows accessible travel. Julie Jones is the creator of Have Wheelchair Will Travel, co-founder of Travel Without Limits magazine, co-owner of Travel With Special Needs travel agency, freelance writer, disability advocate and mother to Braeden (BJ), age 23, who lives with cerebral palsy and her teenage daughter Amelia (AJ). Julie is passionate about accessible tourism and finding ways to ensure her whole family can enjoy travel.  As a child, Julie traveled with her parents and she always intended on travelling with her own children. When her oldest son was diagnosed with cerebral palsy when he was 5 months old, travel was put on the back burner.  Winning a trip to Disney Land in Florida changed all that for this Australian family. That first adventure led to more adventures.   It's…
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#019 Research and resources for siblings with Eric Goll

#019 Research and resources for siblings with Eric Goll

019, Blog, Podcast
You can listen to this podcast episode on iTunes or Spotify. Eric Goll along with Helen Ries and Becky Rossi, all siblings of a person with an intellectual disability, carried out an interesting research study about the top concerns of siblings of adults with intellectual disabilities. Here is what they found. Top issues identified: Mental health of their disabled sibling and their parents.HousingManaging relationshipsEmotional Support for themselves Farther down the list of concerns was funding and support for their brother or sister. Isn’t that interesting?! The research also found that the intensity of support increasing over the years though it decreased temporarily in the 30-39 age group. Perhaps (though no information was collected on this) building a family and a career during that time affecting how much support sisters and…
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#018 Developing the chutzpah & skills for extending invitations ~ with Tom Doody  2 of 2

#018 Developing the chutzpah & skills for extending invitations ~ with Tom Doody  2 of 2

018, Blog, Podcast
You can listen to this podcast episode on iTunes or Spotify.  If you haven’t heard episode 1 of my interview with Tom Doody, go back and check it out! You can find it here.  If you would like a printable pdf of Tom’s tips and tricks, click here. You can refer back to it next time you are trying to work up the chutzpah to extend an invitation or trying to figure out how to do it well.   Tom Doody has been involved with disabled people for over forty years. He has worked in a variety of services in direct service, management, and consultative roles. For the past thirty-five years he has been actively involved with Social Role Valorization training. For the past thirty years, a major part of his work has been to encourage…
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#017 Extending invitations is important even when it feels like swimming up stream  ~ with Tom Doody  1 of 2

#017 Extending invitations is important even when it feels like swimming up stream ~ with Tom Doody 1 of 2

017, Blog, Podcast
You can listen to this podcast episode on iTunes or Spotify.  Relationships are hard for all of us. Extending an invitation to start a new relationship or deepen a relationship is really hard. It makes us feel vulnerable. It leaves us open to rejection.   Some people with disabilities will need us to make invitations on their behalf. This can be super hard! I know it is for me!  That’s why I’m excited that Tom Doody agreed to talk to us.   Tom Doody has been involved with disabled people for over forty years. He has worked in a variety of services in direct service, management, and consultative roles. For the past thirty-five years he has been actively involved with Social Role Valorization training. For the past thirty years, a major part of his work has been to…
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#016 Be careful how you define your community – it matters

#016 Be careful how you define your community – it matters

Blog, Podcast
You can listen to this podcast episode on iTunes or Spotify. A transcript for this episode will be available soon. Check back often. Humans need human connection. With people who understand them. I get it. But let’s not surround ourselves ONLY with other parents of kids with disabilities. 1. We don't help people to understand and be "our people" by isolating ourselves. If we want people to "get it" then we need to offer the opportunity. That means not shutting ourselves off. 2. If we want our kids to exist and be accepted in the community then they need to be IN the community! 3. All the people on our island have got their own stuff going on! When we primarily surround ourselves with other parents of kids with disabilities…
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#015 Why I let my son get frost bite and the dignity of risk

#015 Why I let my son get frost bite and the dignity of risk

Blog, Podcast
You can listen to this podcast episode on iTunes or Spotify. Recently I sent my son out onto a mountain during the frigid Canadian winter on what was the coldest and windiest day of the year with gusts of wind strong enough to close down parts of a ski resort and a chill of colder than -30 degrees Celcius. When he returned, he had frost bite. On his face. What on earth was I thinking you ask? Should somebody call and report me? (OMG I really hope nobody reports me!) What I was thinking, was a reasonable assumption of risk and the dignity of risk. Our family spent a couple of days at Mont Tremblant, Quebec. A popular ski resort in the Laurentian mountains, a few hours north east of…
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#014 Vision leads to belonging in places without paid support

#014 Vision leads to belonging in places without paid support

014, Blog, Podcast
You can listen to this podcast episode on iTunes or Spotify. A transcript for this episode will be available soon. Check back often. Last week, episode 13 of the podcast, I told you all about how my son’s really great support workers moved on in their lives and their careers in education. And I explained that this had largely decimated his social life because my son needs support to do most things. I’m not sure what to do about it! So, the first two things I’ve done are: 1. Go back to vision 2. Ask people I trust to help me think it through. One amazing thing that has happened since I published that episode and sent out a link to the podcast by email… Did you know that I…
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